“To cure sometimes, to relieve often, and to comfort always. “
“To know the patient that has the disease is more important than to know the disease that the patient has”.
A diagnosis of a life-limiting condition requires caring not only for the physical self but also for ones mental and emotional wellbeing. This is true for both those affected by the illness and their loved ones. There can be “no health without mental health.”’
See below for a selection of organisations that provide wellbeing support.
Your healthcare team (GP, Consultant, Specialist Nurses, Community Nurses) are the primary contacts to help support your physical and mental health. By discussing your worries and concerns with them they can identify the appropriate integrated care pathways to best support your needs.
Cambridge and Peterborough NHS Foundation Trust.
People with long-term health conditions are at least twice as likely to suffer from common mental health difficulties such as depression, anxiety and stress. The Psychological wellbeing service offers specialist pathways to help people with physcial health conditions struggling with their mood.
You can self refer through the website or call tel: 0300 300 0055
The First Response Service supports people experiencing a mental health crisis. It provides 24 hr access, seven days a week, 365 days a year. This is open to patients, carers, family and friends. You do not have to have used mental health services before, or have a mental health diagnosis.
You can also be referred by your GP, other healthcare professional or a voluntary organisation.
Call 111, and select option 2.
Age UK provides a range of services that support older individuals.
Services available include:
- Befriending (Telephone & Face-to-Face)
- Home help
- Money and Legal advice (Benefit claims)
- Social group and Day Centres
Mind, is a mental health charity. They can help you make choices about treatment, understand your rights or reach out to sources of support.
The Mind website contains excellent resources and they provide an online community called Elefriends, which is a safe place to listen, share and be heard.
Shout is the UK’s first free 24/7 text service for anyone in crisis anytime, anywhere. It’s a place to go if you’re struggling to cope and you need immediate help.
Shout is supported by The Royal Foundation; as part of the Heads Up campaign launched by Prince William, Prince Harry, Kate and Meghan.
The APF Support Line provides information or advice on living with pulmonary fibrosis.
Call 01223 785725 and leave a message giving your name and phone number. Their team of specialist ILD nurses and patient ambassadors will call you back as soon as possible.