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Awareness, News

Idiopathic pulmonary fibrosis: Listen To Our Lungs during IPF Week

September 21, 2019
By pfsupport
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1817 Views

Dr Helen Parfrey is a consultant respiratory physician at Royal Papworth Hospital and looks after patients with IPF: “At the moment, we do have two treatments that are approved for IPF – they don’t cure it but they help to slow down the rate at which it gets worse.

GPs misdiagnose 35 per cent of patients with idiopathic pulmonary fibrosis (IPF) – a terminal condition which causes irreversible scarring of the lungs.

As part of IPF Week (16-22 September), awareness-raising campaigns are taking place across the UK to try and improve people’s knowledge of this destructive disease, and to helps raise funds for vital research. 

It’s also being used as a chance to help patients feel less isolated and give them information about where to turn to for help.

Read full article on the Royal Papworth Hospital website

Tags: Genetic IPF

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