Listen to past and present members of the Papworth Hospital Support Group describe what life with PF is really like and how connecting with others has helped them.
Videos
Living with IPF and other ILDs - what is it really like?
So You've Been Diagnosed with Pulmonary Fibrosis...What's Next?
Listen to an ILD specialist describing this collection of diseases, it’s impact, and how it can be managed.
Caring for someone with IPF
Insights and advice for carergivers
of a person with IPF.
John's story of living with IPF
John describes breathlessness as “when you start noticing your breathing”, but even though John can’t be as active as before, it won’t stop him from playing badminton.
Ann's story of living with IPF
Ann lives with idiopathic pulmonary fibrosis (IPF), it takes a toll on her every day. She has to work hard to just to breathe – Ann describes it as feeling like she is underwater:
Supportive Care -Life with Pulmonary Fibrosis
What is supportive or palliative care? How can this help manage symptoms and enable a greater quality of life?