Information & Support

Looking for more information?

Click on the topics below to explore guidance and helpful resources.

Lung Health Charities

Services and Teams

Resources

What is PF? How could a support group help me? What is it like to live with PF?

Explore this collection of publicly available videos.

Living with IPF and other ILDs - what is it really like?

Listen to past and present members of the Papworth Hospital Support Group describe what life with PF is really like and how connecting with others has helped them.

Living with IPF and other ILDs - what is it really like?

Listen to an ILD specialist describing this collection of diseases, it’s impact, and how it can be managed.

Living with IPF and other ILDs - what is it really like?

Insights and advice for carergivers
of a person with IPF.

Explore a series of recorded talks delivered during the COVID-19 lockdown to our members on a variety ot topics.

10th July 2020

Jenni Barradell, Senior Occupational Therapist at Royal Papworth Hospital, discussed the importance of energy conservation and strategies for managing breathlessness and fatigue.

14th August 2020

Clinical Lead, Dr Thillai, for the Interstitial Lung Disease clinic at the Royal Papworth Hospital spoke to theĀ  Support Group about COVID-19 and changes to clinical management.

11th September 2020

Rona Hardy, Senior Clinician for Long Term Conditions at the Cambridgeshire and Peterborough Psychological Wellbeing Service (PWS) talks of services, signs and symptoms of anxiety and depression, coping with chronic illness, and strategies for managing anxiety.