Support Group Talks

Owing to COVID-19 pandemic restrictions on gatherings, the Support Group moved temporarily to online meetings.   We regularly invited professionals to present information, relevant to support group members and their families, to learn more about Pulmonary Fibrosis, available treatments, and disease management.

Here you can view slides delivered by presenters at our online meetings. Details of up coming meetings can be found under Events.

If you are not already a member of the support group and would like more information about how to attend future meetings please contact us at info@papworthpfsupportgroup.org.uk 

10th July 2020

Jenni Barradell, Senior Occupational Therapist at Royal Papworth Hospital, discussed the importance of energy conservation and strategies for managing breathlessness and fatigue.

14th August 2020

Clinical Lead, Dr Thillai, for the Interstitial Lung Disease clinic at the Royal Papworth Hospital spoke to the  Support Group about COVID-19 and changes to clinical management.

11th Sept 2020

Rona Hardy, Senior Clinician for Long Term Conditions at the Cambridgeshire and Peterborough Psychological Wellbeing Service (PWS) talks of services, signs and symptoms of anxiety and depression, coping with chronic illness, and strategies for managing anxiety.

9th October 2020

Maxine Flewett, member of the Papworth Hospital Pulmonary Fibrosis Support Group, speaks to the Group about her work with the British Lung Foundation Task Force for Lung Health

13th November 2020

PHPFSG deputy Chair, Susan Hall and Action for Pulmonary Fibrosis (APF) National Support Group Manager, Debra Chand, speak to the Papworth Pulmonary Fibrosis Support Group about how the Group and APF support patients & carers through support networks, and APFs response to COVID-19.

12th March 2020

PHPFSG committee members Susan Hall, Clare Beckett and Ron Flewett share their experiences of how to stay physically active with Pulmonary Fibrosis.